‘To Love Un-conditionally’ Our Autism Journey

Oby

As a proud loving Mother of two young awesome boys on the Autism Spectrum, my dear friend Yinka approached me to share little nuggets I learned on my journey. 

I. Was. Elated.

So, I decided to share my personal story following the diagnosis stages I went through with my sons. Which I know a lot of other parents  are familiar with as well, on this autism journey.

Stages – From a Parent’s Perspective

Shock 

“Your child has Autism Spectrum Disorder.” Says the Doctor. 

This has come as a shock to you even though you saw the signs, and you knew your child or baby was not quite developing like other kids his age. You literally feel like your world has come to a stand-still, even though it has not. 

Anyhow you want to put it, the words “Autism Spectrum Disorder (ASD)” sounds weightier than the actual situation. 

You scramble everywhere and anywhere for a cure. You join numerous blogs that make the situation dire than it is.

  • Denial 

Family and friends tell you your child is “Ok” and “Does not have Autism Spectrum Disorder. He/she is just slow

  • “You know boys are slower” They say… 
  • My cousin was slow, but now He’s great!” They say...
  • You want to believe them. You believe them...

After a couple of weeks, you realize the Developmental Doctor was right!

Your-Child-Misses-Major-Milestones.

  • Acceptance. Get to Work! 

After observing your child for some days/weeks and much research, you accept it.

In this stage:

Breath.

Take a cup of Coffee.

Shut your eyes for a minute.

Then get to work.

  • Research, Research, Research!
  • You will find excellent and great advice everywhere. 
  • You will also find depressive tales and more tales of doom everywhere. 
  • You will also find people who want to take advantage of you (financially), promising a total cure everywhere.

You will need to diligently research to find the right therapist (Board Certified Behavioral Analyst BCBA, Speech Pathologist, Occupational Therapist, and so on).

Get this information from your doctor, and very good blogs.

Please interview them to make sure they’ll be great fits not just for your child, but also for you and your family.

  • Avoid online scammers at all cost who promise solutions and prey on your desperation.
  • Avoid pity-parties at all cost. 
  • Avoid online groups, that make your situation seem so dire and even make you more depressed, at all cost.
  • Mental Health: 

As the caregiver, your mental health is vital.

Take care of it. 

You must be happy in order to impart happiness onto your child. 

This is important! I cannot stress this enough. 

If uncle Johnny makes you feel uncomfortable or unhappy whenever you bring your dear child to visit him, then stay away from Uncle Johnny.

If therapist Jane worsens your situation or does not really care for you or your child, then change therapist.

Have little tolerance for anything that’ll send you off to depression. 

There is hope always! Always!

Escape (even if it’s just for a few minutes) when kids are not with you, or when you have help. Carve out time for yourself.

Look for what makes you happy and take out some time DAILY. For me, I am a hopeless romantic.

I binge on all things romantic from the trilogy book “50 Shades of Grey” to Netflix’s “Love is Blind”. It makes me happy!

  • Support! Support!! Support!!! 

It takes a village! You need the support of family, friends, place of worship, care-givers. 

#YOU-CANNOT-DO-THIS-ALONE!

  • Let your Child Lead You! 

When you see a different behavior, ‘Your-child-is-NOT-WEIRD!

He/she is just different and learns everything about life differently.

Let your child guide you. Follow your child’s lead and discover how he/she learns. When you do this, you’ll see many windows of opportunity to teach your child and bring your child more to your world! It works! 

  • Positive Affirmations:

Because I am a woman of Faith, I believe in speaking words of Biblical Faith daily to my son. Speak words of Affirmation daily to your child. Teach your child to say these words daily.

When my son was much younger, I taught him a simple night prayer and to say the words “I am healed.” Now he says these daily words of affirmation before he starts his day: “I will be taught by the Lord, and great will be my peace and undisturbed composure.” (From Isaiah 54:13).

  • Excel/Flourish:

Once all these are in place, your child will begin to excel!

You will begin to excel.

Your family will begin to excel.

You are happy!

You laugh!

You play!

You rejoice!

Remember to jot down achievements, no matter how small (or big).

I call them “Praise Reports.”

Always remember that God is good, and that NO-ONE is a biological accident.

Your child is a blessing full and LOVE.

Your life and you child’s life have Purpose!

Absolutely! There is meaning to all this! In time you’ll find out. 

I love my BOYS. My life would absolutely be hopeless without them.

They-teach-me-daily.

Our dear Sons are amazing!

They show us the way daily❤️

We Love them dearly! 

I’d like to thank my amazing husband for his awesome endearing Love and full support. He is amazing!❤️

I also like to thank our awesome families for their amazing Love and full support.❤️

Much Love, Oby.

ABOUT HER: Oby holds a Masters in Electrical & Computer Engineering, Bachelors in Electronics Engineering. She worked for many years in the medical device industry with Fortune 500 companies in research & development, as well as leadership roles. She lives in Atlanta, GA and is happily married to Dr. Ekekwe for 16 years. She currently home schools her older son while the younger son attends school.

Yinka & Oby!

“Oby and I have been friends for over 30 years! #FGGC Sagamu Alumnus! A couple of years ago, we started talking more about her son’s autism diagnosis, Oby was very transparent and willing to share her struggles and triumphs, especially after knowing that was my field of specialization and passion. Overtime, she became an active member of my non-profit organization DCN “My Child Thrives” support group. Oby has been a vibrant, assertive and valuable resource to other members on the forum. She is certainly a force to reckon-with! Her witty takes on situations! her abundance of terms of endearment! as she showers group members with hope! ‘Autism diagnosis report certainly has nothing on this sassy lady!

Yours in HOPE!

Yinka!

as I share ‘Not Lucky, I’m Loved’ by Jonathan McReynolds to celebrate – April, ‘National Autism Awareness Month!

Kodi Shines! by Folarin Lawrence

So, I watched America’s Got Talent #AGT last night with my kids and witnessed a spectacular triumph with Kodi Lee emerging as the Champion.

My kids, 15+, 13+ and 8 at first were not as thrilled as they were rooting for Detroit Youth Choir, since we are now Michiganders, #PureMichigan! so I got my thinking cap on and did my best ‘Yinka-take’ on the issue.

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Kodi is blind and has Autism Spectrum Disorder. When it was discovered that he loved music at an early stage, that became the one positive coping strategy He maintained against living in this world where a child is ‘boxed-in‘ because of their ‘disability“.

But He was still able to steal the hearts of viewers and voters alike with his silky voice and renditions of classic ballads.

According to his mother,  “We found out that he loved music really early on. He listened and his eyes just went huge, and he started singing, that’s when I was in tears. I realized he’s an entertainer. Through music and performing, he was able to withstand living in this world because when you have autism, it’s really hard to do what everybody else does. It actually has saved his life playing music.”

Ordinarily, He is like a little kid and his affect is typical of someone on the spectrum; but when he gets behind the keys and opens his mouth; It’s like, you have been blessed with the presence of an angel.

There is no doubt in my mind that this young man is not just “special(as the generality of people want to label him) but divinely gifted.

It is also evident in the support of his family and his interaction with his Mom, siblings and Dad. It is obvious that they have spent countless hours working on his “strengths” and his love for music, giving him the courage to go out there and not just thrive but also shine brighter than anyone else.

Each and every child with special needs or not, has been endowed and divinely blessed with unique gifts! ‘and that’s what makes us all SPECIAL.

The high point of the night for me was after he had been announced as the winner and was trying to celebrate and his mother took his stick from him so he can have a happy “tantrum” jumping as high as he dared and clapping with a huge smile on his face.

I challenge parents today to observe closely and find that spark that lights up their child’s imagination and brings them joy of accomplishment, believe me it might be the most mundane task, but when you find it, celebrate it with them every time they work hard or feel faint about it and enjoy watching them blossom.

God’s Peace,

Kevin Folarin Lawrence – is an active member of Man Voice@DCN and “My Child Thrives” – by DCN,  a Developmental Care Network Support Group on What’s App & FACEBOOK for families and caretakers of children on the spectrum/disabilities. He can be reached at kevin@dcnmail.org

Logo Transparency

A light for her pathway – Autism Journey

 

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As the month of April comes to a close, many have spent the month bringing
awareness to the many faces of Autism. As any parent or family member who has
a child on the Autism Spectrum knows, this life is exactly that:

‘A Lifelong Experience’

I am blessed with two sons, both on the Autism Spectrum.

Now that they are grown, Ages 21 and 22, I can reflect on the many moments, early on before diagnosis, when I was full of doubt and confusion, thinking I was a terrible mom and simply did not know how to raise children.

What I didn’t realize was that I was being prepared for a life of adventure, smiles and small victories that would be major accomplishments in my eyes. No matter what, we are still parents. Parents of children that have so much potential and as their parents, we must remember that we are their best advocate.

We are also the ones to teach our children the life skills they need to survive in this unforgiving world.

As my sons have grown older, I have realized how much more they need assistance in everyday social situations. When children are younger, supports tend to be everywhere, but as they grow older, those supports seem to be less and less, especially if the child functions high enough to go to college or have a job.

Teach your child to be a good citizen that can function in society to the best of his/her ability. If your child is very young right now, this may seem a lifetime away however, before you know it, you will be looking at each other saying “Now What?

Keep in mind, while this may seem overwhelming at times, remember there are others who have been in your shoes and you CAN do this, and so can our kids!

Never be afraid to reach out to those in similar situations for support.

Together, with prayers, patience, community support and love, we can nurture young minds and raise resilient adults when we focus on their potentials now.

Written by: Valerie Lawson.

 

*For the past 3 years, Valerie and I usually meet one Friday in a month after clinicals at different Panera Bread locations to brain storm on assessment & treatment planning for children with disabilities, pray about challenging caseloads, talk- deep about life, laugh out loud & silly like teenagers over bowls of clam chowder as we continue to implement developmental disabilities initiatives. I met Valerie in class during  my practicum/residency program Fall of 2016).

Valerie is a Behavior Consultant with DCN Autism Clinic in Michigan, a caring and devoted mother to two young men with Autism, ages 21 and 22 years old.

Yours in HOPE!

Yinka.

 

 

 

 

When you meet Julia, you SEE AMAZING!

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When you wake up to a new day, what do you see? Well, apart from blurry eyes and snotty noses due to sleep deprivation, congestion or insomnia, what makes you just, ‘want to keep waking up?

If you are in love, or still thinking of it, I guess you’re probably saying…’duh, my lover of course! If you are missing someone, you’d probably say…’dang! Oh precious beloved, showeth thy face!! Where hath thou!! (in your magical imaginary soberness).

And if you are like the group of people I meet weekly for support coordination therapy…’Aha! Slowly and gently rise from your slumber, squeeze your pillow and whisper into the hollow of your palm (oh please ignore your distinctive breath) and say slowly, ‘Today, I will do better, because I will See Amazing”

All said and done? Yes? C-o-n-g-r-a-t-u-l-a-t-i-o-n-s! You made it into another day! I am also cheering you on….’as I subconsciously cheer myself on too!

So, a couple of days ago, yours truly turned 45! Like…’yeah, the big 45! And I wasn’t sure if it was worth celebrating or not. Thank God for caring people around me who raised the roof and made it rock! #NoviUnconditionalLove

The much-younger me would have jumped on the next train to NYC to be consumed in the awesomeness of the city, sometimes, it’s just that train ride that does it for me, a more one-on-one time alone with me, myself and I! Just meditating  (I bet you can’t keep a city girl out of the city for long, how I missed my early years growing up amidst the hustle and bustle of a typical Lagos city amusement!) or as my parents have always dreaded all those years…’Oh, she’s started another birthday party in our living room without informing us! Phew!

But not this year… ‘This time around, it was all about Julia. The new #See Amazing kid on Sesame Street! Have you seen her? All cute and so peculiar…’representing every child with special needs…more so, Autism!

Why now? I’d ask myself over and over again. Yeah, why now Yinka?

Awareness. Acceptance. Because just as I celebrated my birthday, my childhood bosom friend and neighbor also turned 45! And happened to be the Julia we all never knew or could understand….’45 years ago!

Did we (children) know she had a unique personality? Or did we just assume she’d always been a difficult child with mental illness? Who knew about the features of a child on the spectrum then? I bet none of us did. All I knew was that I eventually got used to her mannerism as her parents were my God-parents who mentored me all through my sacramental classes at Holy Cross Cathedral then.

So, please meet Cecelia, 45, a daughter, a sister, a friend and childhood neighbor of over 40 years with autism, a rare one that survived the stare, stigma and slur but prevailed with the support of her loving and caring family in a society that condemns such ailment and is so quick to label, castigate and if possible ostracize.

Or perhaps, you also know a Cecelia?  a Julia of my generation, that stood out without condemnation even as ignorant as we were then of her uniqueness, still managed to join in the street play, still managed to attend mass every 6am with her parents, still managed to attend St. Mary’s convent, managed to get her feelings out even when she’s oppressed by lack of consistent vocalization techniques.

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Today, as I watch sesame street and I see how the world is embracing the new character of Julia – the chosen voice from the autism community, my eyes well up with tears and my heart is unable to contain the joy and excitement of knowing that finally…’every child deserves a place of acknowledgment and acceptance, and not one of isolation or disparity!  Thank you Leslie Kimmelman for the digital characterization and Stacey Gordon for the performance. Thank you autism community for starting the discussion.

When you awake to a new day, what will you be thankful for? I am grateful to God for allowing me to see amazing in every child I encounter. Tantrums and all, I still see amazing and acceptance first.

Yours in HOPE as I share Sesame Street’s ‘Meet Julia’

Yinka.

 

 

 

 

 

 

 

An awareness worth accepting: Embracing AUTISM!

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Have you recently felt a kind of jubilation within your heart upon completing a project, a job or an assignment? Self-appraisal aside, how would you score yourself? Thumbs up or down?

Did you feel accomplished? Frustrated? Burned out? Confused about your career path? Are you still wishing you could have chosen a more fulfilling goal to work towards? Do you crave for acceptance or recognition from others to celebrate your victory? How would you describe your goal-driven-desire even without achieving any of the things listed above?

A couple of Sundays ago, right after church, my girlfriends and I (Kene & Tinunke) allowed our kids to play together in the lobby as we got carried away deep in a concerned conversation about career choices and how our African parents played a huge role in strict decision making for their children!

Hmm! Tell me about it! ‘We echoed amidst deep laughter, hip slapping and a cheerful pat on the shoulder as we exchanged stories of a confusing and oppositional remembrance of our struggle to decline our parent’s choices of profession for us then! Ah, you must become a Medical Doctor! Or ‘an Engineer! Or a Lawyer! …’Lol. Thank goodness we eventually followed our heart’s desire, then or later!

After decades of enduring and attempting to be like my mother, the civil service accountant or trending after the steps of my father, the articulate site developer/Land surveyor… ‘It just wasn’t my calling…’it didn’t last long! ‘Years of boring TD classes and assorted French curves with cursive initial of AOG engraved on both sides! Long sessions of Math tutoring when really my mind was focused on watching ‘Wild Rose’ Phew!

Many people are still living stress-filled lives because they never sought and discovered God’s plan and are still trapped in jobs and careers that simply do not fit into. Every day, they feel like the proverbial round peg being jammed into a square hole – isn’t that a painful and frustrating experience? Meaning…people never experience fulfilment in their work because they are in the wrong line of work to begin with just to fulfil other’s needs!

There was a passion hidden deep inside of me, yet unraveled, but always rearing its way out of my consciousness. It has to be something greater than me and I waited…and waited…and waited…’until I set my eyes on Peter, the cutest 5-year-old boy, recently diagnosed with Autism Spectrum disorder…I became his behavior therapist…’that was 14 years ago…He was my first client as He helped pave the way for my passion working with special needs children.   #LifeGoals

So, since we are in April, and its world Autism month, ‘ask yourself…’how aware am I about the term Autism, and how understanding or accepting am I, when I relate with someone with Autism? ‘Am I tolerant and capable of coping or communicating with someone on the spectrum? What difference can I make in the life of someone with Autism? Or how can I be useful to the family of a child with Autism?

It is easier to proclaim we care about someone with a disability or illness or even carry a banner of awareness when our hearts reject all the flaws that come with it!

We sometimes carelessly use hurtful and inappropriate names (crazy, weird, awkward, sickly child or dying woman) to label others just because we feel they are vulnerable or we think we are stronger than their situation? Hello? ‘Got perfect life?

Here’s one of the 10 things a child with autism would like you to know and accept, before judging…

Listen to all the ways I’m trying to communicate.

It’s hard for me to tell you what I need when I don’t have a way to describe my feelings. I may be hungry, frustrated, frightened, or confused but right now I can’t find those words. Be alert for body language, withdrawal, agitation or other signs that tell you something is wrong. They’re there.

Or, you may hear me compensate for not having all the words I need by sounding like a little professor or movie star, rattling off words or whole scripts well beyond my developmental age. I’ve memorized these messages from the world around me because I know I am expected to speak when spoken to. They may come from books, television, or the speech of other people. Grown-ups call it echolalia. I may not understand the context or the terminology I’m using. I just know that it gets me off the hook for coming up with a reply.

By Ellen Notbohm from the book Ten Things Every Child with Autism Wishes You Knew, 2nd edition (2012, Future Horizons, Inc.)

We all want to be successful in our chosen profession. Whether we believe in what we do or not. Our goal is to nail it and keep moving. Your office may be downtown or just inside your front door. Your work clothes may be an elegant suit or ragged jeans and a stained t-shirt. You may be paid in cash or with crayon drawings and sticky kisses like me! It doesn’t really matter because none of these things alone makes us successful in the work place.

Our success comes from the lives we touch with real acceptance…full acceptance of all the shortcomings! #Autism Acceptance

God empowers His plan in us, but when we step into our own agenda or a plan created by anyone else, we are stepping into and relying upon our frail, limited strength. We will soon be empty and stress will flood in, filling the emptiness with anxiety and tension. Don’t waste another day just doing the “next” thing. Take a long, hard look at your work, your job, and your agenda to make sure you are in the right place – doing what you were created to do in this world.

Do more this month, volunteer to be of assistance to a family with a special needs child, and love them genuinely for life!

Yours in HOPE!

Yinka.

Autism Care Network UK

Autism Care Network, Dubai.

 

 

How aware are you about ‘AUTISM’?

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Today April 2nd, is World Autism Awareness Day. Although we know so much more about autism than we did twenty or thirty years ago, it is still very important for all of us to make sure we know some facts and are able to debunk the myths about autism.

As an Applied  Behavioral Analyst with a  deep passion for children with autism, I am joining the rest of the world in wearing blue #LIUB and campaigning for a cause I believe in!

But today is about so much more than tweets and t-shirts. People like my childhood friend, Oyin! My cousin Sammy! and so many others who are on the autism spectrum, live with it every single day — we can’t stop showing our support when the blue lights go out.aut 5

Awareness is the first step to making true progress. With a loud enough megaphone, supported by your voice, we can convince lawmakers to fund more research for innovative treatments and resources for students on the spectrum who need a little extra support to keep up with their peers.

We can keep mapping the human genome to gain greater understanding of the many forms of autism and develop personalized treatments. We can educate more parents about the signs of autism to increase the rate of early diagnosis — and then connect them with the resources they need to help their child lead a happy and healthy life.

Here are 10 good reasons we should care about AUTISM:

Autism spectrum disorder (ASD) is a developmental disability that can cause significant social, communication and behavioral challenges. There is often nothing about how people with ASD look that sets them apart from other people, but people with ASD may communicate, interact, behave, and learn in ways that are different from most other people. The learning, thinking, and problem-solving abilities of people with ASD can range from gifted to severely challenged. Some people with ASD need a lot of help in their daily lives; others need less.aut 3aut 2A diagnosis of ASD now includes several conditions that used to be diagnosed separately: autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), and Asperger syndrome. These conditions are now all called autism spectrum disorder.

  1. About 700,000 people alone in UK are on the autism spectrum and with their families they make up around 2.8 million people whose lives are affected by autism on a daily basis according to the National Autistic Society. While about 36,500 of every 4 million children born each year in the United States will have autism.
  2. The number of people diagnosed with Autism Spectrum Disorder (ASD) has dramatically increased over the last few years. Today it’s estimated that one child in 68 has ASD. This means in a secondary school of 1500 students about 15 of them will be autistic.
  3. Being diagnosed as autistic isn’t a label or something negative – it can mean the difference between growing up in a confusing, scary world and getting all the right support and services. It also gives parents an explanation for difficulties their child is having. Adults can be diagnosed with autism as well.use1
  4. People with autism have a unique take on the world that can be fun, enlightening, entertaining and thought-provoking. They encourage us to see the value of sounds, smells, places and objects that may otherwise pass us by.
  5. Chances are most people will know or be related to someone with autism making it vital that they understand something about what autism is and how they can adapt their world to make it more autism-friendly.
  6. Autism is an invisible disability. That they could have extreme difficulties with sensory processing and social understanding and interaction is not immediately apparent.
  7. Every individual with autism have their own unique version of autism. There are many myths and assumptions, but if you’ve met one person with autism … you’ve met one person with autism.aut 4
  8. That kid in the supermarket having a tantrum might just be a child so overloaded with sights, smells and sounds that the fear and stress has led to a meltdown. Think twice before judging: many parents are fighting battles like these every day and need your understanding and support.
  9. Autistic traits have had a clear benefit to human development, and can affect the emotional well-being of the caretaker – Reach out to a family in need today!
  10. Finally, I would like everyone reading this to show support within their natural environment by volunteering to learn coping strategies – Sunday schools! Camps, or even within your community! And my prayer is that, eventually they will grow up in a world that understands and embraces their difference … shortcomings and all.

***Dedicated to all my 240 adorable Autism community children & families, to the ones we have lost due to late intervention or mis-diagnosis and to all the early intervention/behavioral therapists who have dedicated their lives to serve them. Thank you.

Yours in HOPE as I #LightItUpBlue for Autism Awareness this month!

Yinka.

Echoes of 2015: “Keep On Moving, Don’t Stop”

In one word, how would you describe your encounter with the year 2015?

Beyond any doubt, this is certainly my year of “Go, Get it done now”.  Even as am writing this, my head is thrown back in an exaggerated falling motion, hands and eye lashes flapping joyously with a deep amorous laughter (like an excited toddler) While at the back of my head, I envisioned my favorite Trinidadian musician (Mighty Sparrow) playing my favorite soca version of ‘Dancing Queen” as I grooved to the rhythm and yell out…Yes!!

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American Cancer Society – Making Strides Against Breast Cancer Walk  Team: Greater Than Cancer. OCTOBER 2015

Are you wondering “what planet is she on exactly, with all these gestures of excitement? Eh, common, ‘it’s not even close to what you’re thinking, honestly… (Lol) “so-get-your-crummy-mind-out-of-the refrigerator and listen to what I’ve got to say! (smiles).

Wow! My heart is completely paraded with these un-explainable kind of feeling you get when you just finished scooping up your last spoon of ice cream, its still melting on your tongue, but because you just don’t want to quickly loose that sugar rush sensation, you drag the dissolving process. You smile as you close your eyes, allowing the powerful luscious sensation to play hide and seek in your mouth. Hmmm.

You mutter to yourself, ‘Wholly Guacamole!! ‘This is s-w-e-e-t! You are licking the escaped creamy patch with your tongue and just hoping everyday would be an-ice-cream day, Yeah, it feels good right? Exactly! That’s the cloud I am on.

So, I bet everyone DID something spectacular and different this 2015? Something crazy but excitingly abstract? Something out of the norm, yet breathtakingly unique? Something unusual but rewarding? Believe me, every one of us DID something peculiar compared to 2014. Whether Commendable, Confusing or Complicated. Something did happened that has shifted our mindset! It’s called the Go, Get it done dictum!

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RCCG LSMC Total Woman Conference – April 2015

For me, I couldn’t have ended 2015 well without thanking God for all the beautiful spaces and platform of opportunities that were created for me! From the initiation and launching of the NGOs to the acceptance into doctoral school!

The powerful ministration at the Total Woman Conference, my wonderful superb sisters-united power team! The eye opener at the much awaited residency program in AZ! The long summer nights at the beach with family! The crab feast at the Inner harbor, the once in a lifetime impact and blessings received from Kenya during the QEG Summit!

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Queen Esther Generation Summit in Kenya. JUNE- JULY 2015

The joy of embracing new dreams and walking away from past distractions, standing tall to establish self in career! The “shut-the-front-door” kind of feelings you get when you decide to stand tall, no matter what! The mind-blowing and oh-so-humble experience of connecting with relevant links  in Nigeria, the magnitude of the support system.

OMG! My beautiful team members in Lagos still expanding, making headlines and treading on a just cause for humanity! PRICELESS.  Oh! What a night! @ Etim Inyang Crescent, V/Island with WAZOBIA Naija FM Spectacular midnight host of Love Clinic, Kbabalovedoctor. Awesome!

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WAZOBIA FM Lagos, Love Clinic Host, KBABALOVEDOCTOR. OCT 2015

 

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“My Life after Cancer” Interview with 60 Minutes TV, Lagos. Oct 2015.

Aha! The courageous families in whose

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Autism Awareness In Nigeria – Interview with TREK MAG. in Lagos. Sept 2015

presence, participation and position completed my GO GET IT DONE project in Nigeria. My first humanitarian award team, Thank you! For every support system unintentionally not mentioned. Thank you.Literally, this is for everyone who’s touched my heart in 2015, either paraded it, nursed it, comforted it, cared for it, scribbled on it or skipped it or even attempted to torture it! Thank you.

 

My Greater Than Cancer team in the US! Thank you for your support and your genuine love, for dragging yourselves out to walk with me that very cold Saturday morning in Oct! You guys rock and made a survivor feel so special to be alive. Love you all for real!

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Team: Greater Than Cancer, USA

I am grateful for new friendships defined, old ones restored and damaging ones put aside for remission. For all the projects left hanging but never forgotten, the best is yet to come.

Finally, let’s search our conscience in the remaining hours, ‘what walk awayhas 2015 done for you, lately? What is that beautiful memory you want to frame and adorn with praises? Or what’s that situation that looks like progress in the making but really behind closed doors, brings you to tears? What’s that addiction or craving you are still abhorring? What’s that one word you’ve been dreading to say? ‘Afraid of going into 2016? What’s that one brutal feeling of rejection, emptiness, hopelessness and depression you’d rather bury with 2015? Marital issues? Complicated relationships? Estranged Family members? Mr. Right still hiding? Health problems? Kids acting up? Conception not cooperating? Loved ones departure? ‘Got baggage? Got issues? ‘Got trust problem? ‘Got heart break? ‘Got love to give? Aha! ‘Got Christ? You do? ‘Then you already ‘Got this! 🙂

This is the best time to get up and get it done. Whatever it is that’s holding you back from your aspiration, ‘deal with it now. This is not even about making resolutions. This is more of a period of revelation.

I am hoping someone reading this will tap into that realm too. Set up inward realistic goals, and let your passion for success be your drive for the New Year. ‘Cos, that’s what am doing. Thank y’all for a rewarding 2015!  See you in a ‘Doing IT RIGHT 2016! by God’s grace.

Yours in HOPE as I share “Keep On Moving” by Soul II Soul.

Yinka.

April is “AUTISM AWARENESS MONTH” (why every WOMAN should attend the upcoming AUTISM support workshop) Part Two.

autism mainWhat I noticed as I walked in was a toddler laughing and spinning around with a stuffed animal at the end of her outstretched arms. She had that kind of pure laughter that made me smile just hearing it. I was ushered in by her tensed parents as I pulled out my hands for a firm handshake, something I usually do to help calm my client’s family, especially when they’ve just received a diagnosis of Autism for their child.

Their beautifully decorated living room had every wall covered with pictures of Alana from child-birth; some were craftily captured in black and white prints, with focal point on the child’s contagious laughter. I sat back and observed my little client for a while. I’m not sure she even noticed me.

Halfway through my pile of paperwork (Developmental Behavioral Assessment/M-CHAT/ASQ) with her parents, I heard the girl shout, “Elmo! ‘Love Elmo!” her speech was stifled and seemed mumbled, under water-like.

“Oh hi. ‘I love Elmo too! I whispered in exaggerated excitement, “Do you want to play with me?” I went down on the floor and sat next to her, not looking into her eyes or invading her personal space, just showing her my folder with the picture of Elmo in it! She didn’t answer or object, but gently touched the folder and looked away! That was a go-ahead-show me sign from her! Yes!! (I was totally thrilled).

A relationship was built! trust was established! sensory impact was initiated, boundaries were set! and the tears began to fall from her mother, as I smiled up at my newly acquired friend. That was 2 years ago… Alana, the 80th kid with Autism Spectrum Disorder on my caseload was as equally special and beautiful to me as all the other children put together in my entire life time!

Today, she’s progressing well and is a very healthy five-year-old, last time I checked with her mom, “oh, she sings “let it go” in her own very special way! …well, literally! And also receiving support through Autism Speaks Group. Awesome!

April 2nd is World Autism Awareness Day and Light It Up Blue! It is celebrated each year and adopted by the United Nations in 2007 to shine a bright light on autism as a growing global health crisis. Autism is one of only three health issues to be recognized with its own day by the United Nations to increase world knowledge of autism and impart information about the importance of early diagnosis and early intervention.

So, if you noticed a child has lack of or delay in spoken language, repetitive use of language and/or motor mannerisms (e.g., hand-flapping, twirling objects, consistent rocking), Little or no eye contact, Lack of interest in peer relationships, Lack of spontaneous or make-believe play or Persistent fixation on parts of objects.. Chances are you know an Autistic child or have encountered one somewhere. It’s not easy knowing what to do or how to respond to the quirks (or outbursts) of an autistic child. Public tantrums are par for the course with these children.

How many of us have seen a kid have an outburst while their embarrassed parents try to get control? Well, ratchet that up a couple of notches for autistic kids. Their tantrums can get rough. Don’t …gape and stare at the child and parent, saying “Can you believe that kid?” faces. And especially don’t make comments or tell the parent, “Can’t you control your kid?” Just go about your business. Or if you catch the eye of the child’s caregiver, just flash a smile. Or offer to help! It can work wonders.

Honestly, you haven’t met anyone so unique and exceptional until you encounter a special need child. Their love is pure, genuine and transparent. You see through their little eyes rays of hope and unquestionable bewilderment. What you see is what you get!

So, instead of staring at the “un-believable” sight or scene, why not give emotional support. Be that imaginary horse to be ridden on or be their knight in shining armor who sings of their praises, it helps build their confidence. Reach out this month – to a special need child and family.

***(Dedicated to all my 100 Autistic caseload children and their families from over 11 years! – ‘I am (still) Lighting it BLUE for you this month and (still) believing God for a miracle!) Love you all for real!

***You can learn more about giving support to a special needs child/family at the upcoming:

*** RCCG LSMC 2015 TOTAL WOMEN CONFERENCE RETREAT WORKSHOP:

Help! I Can’t Do It Alone! on Saturday, April 25th 2015. Please visit http://www.rccglivingspring.org for more information.

Yours in HOPE…

Yinka.

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FYI:

“Autism spectrum disorder (ASD) and autism are both general terms for a group of complex disorders of brain development. These disorders are characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviors.

With the May 2013 publication of the DSM-5 diagnostic manual, all autism disorders were merged into one umbrella diagnosis of ASD. Previously, they were recognized as distinct subtypes, including autistic disorder, childhood disintegrative disorder, pervasive developmental disorder-not otherwise specified (PDD-NOS) and Asperger syndrome”

https://www.autismspeaks.org/what-autism