‘To Love Un-conditionally’ Our Autism Journey

Oby

As a proud loving Mother of two young awesome boys on the Autism Spectrum, my dear friend Yinka approached me to share little nuggets I learned on my journey. 

I. Was. Elated.

So, I decided to share my personal story following the diagnosis stages I went through with my sons. Which I know a lot of other parents  are familiar with as well, on this autism journey.

Stages – From a Parent’s Perspective

Shock 

“Your child has Autism Spectrum Disorder.” Says the Doctor. 

This has come as a shock to you even though you saw the signs, and you knew your child or baby was not quite developing like other kids his age. You literally feel like your world has come to a stand-still, even though it has not. 

Anyhow you want to put it, the words “Autism Spectrum Disorder (ASD)” sounds weightier than the actual situation. 

You scramble everywhere and anywhere for a cure. You join numerous blogs that make the situation dire than it is.

  • Denial 

Family and friends tell you your child is “Ok” and “Does not have Autism Spectrum Disorder. He/she is just slow

  • “You know boys are slower” They say… 
  • My cousin was slow, but now He’s great!” They say...
  • You want to believe them. You believe them...

After a couple of weeks, you realize the Developmental Doctor was right!

Your-Child-Misses-Major-Milestones.

  • Acceptance. Get to Work! 

After observing your child for some days/weeks and much research, you accept it.

In this stage:

Breath.

Take a cup of Coffee.

Shut your eyes for a minute.

Then get to work.

  • Research, Research, Research!
  • You will find excellent and great advice everywhere. 
  • You will also find depressive tales and more tales of doom everywhere. 
  • You will also find people who want to take advantage of you (financially), promising a total cure everywhere.

You will need to diligently research to find the right therapist (Board Certified Behavioral Analyst BCBA, Speech Pathologist, Occupational Therapist, and so on).

Get this information from your doctor, and very good blogs.

Please interview them to make sure they’ll be great fits not just for your child, but also for you and your family.

  • Avoid online scammers at all cost who promise solutions and prey on your desperation.
  • Avoid pity-parties at all cost. 
  • Avoid online groups, that make your situation seem so dire and even make you more depressed, at all cost.
  • Mental Health: 

As the caregiver, your mental health is vital.

Take care of it. 

You must be happy in order to impart happiness onto your child. 

This is important! I cannot stress this enough. 

If uncle Johnny makes you feel uncomfortable or unhappy whenever you bring your dear child to visit him, then stay away from Uncle Johnny.

If therapist Jane worsens your situation or does not really care for you or your child, then change therapist.

Have little tolerance for anything that’ll send you off to depression. 

There is hope always! Always!

Escape (even if it’s just for a few minutes) when kids are not with you, or when you have help. Carve out time for yourself.

Look for what makes you happy and take out some time DAILY. For me, I am a hopeless romantic.

I binge on all things romantic from the trilogy book “50 Shades of Grey” to Netflix’s “Love is Blind”. It makes me happy!

  • Support! Support!! Support!!! 

It takes a village! You need the support of family, friends, place of worship, care-givers. 

#YOU-CANNOT-DO-THIS-ALONE!

  • Let your Child Lead You! 

When you see a different behavior, ‘Your-child-is-NOT-WEIRD!

He/she is just different and learns everything about life differently.

Let your child guide you. Follow your child’s lead and discover how he/she learns. When you do this, you’ll see many windows of opportunity to teach your child and bring your child more to your world! It works! 

  • Positive Affirmations:

Because I am a woman of Faith, I believe in speaking words of Biblical Faith daily to my son. Speak words of Affirmation daily to your child. Teach your child to say these words daily.

When my son was much younger, I taught him a simple night prayer and to say the words “I am healed.” Now he says these daily words of affirmation before he starts his day: “I will be taught by the Lord, and great will be my peace and undisturbed composure.” (From Isaiah 54:13).

  • Excel/Flourish:

Once all these are in place, your child will begin to excel!

You will begin to excel.

Your family will begin to excel.

You are happy!

You laugh!

You play!

You rejoice!

Remember to jot down achievements, no matter how small (or big).

I call them “Praise Reports.”

Always remember that God is good, and that NO-ONE is a biological accident.

Your child is a blessing full and LOVE.

Your life and you child’s life have Purpose!

Absolutely! There is meaning to all this! In time you’ll find out. 

I love my BOYS. My life would absolutely be hopeless without them.

They-teach-me-daily.

Our dear Sons are amazing!

They show us the way daily❤️

We Love them dearly! 

I’d like to thank my amazing husband for his awesome endearing Love and full support. He is amazing!❤️

I also like to thank our awesome families for their amazing Love and full support.❤️

Much Love, Oby.

ABOUT HER: Oby holds a Masters in Electrical & Computer Engineering, Bachelors in Electronics Engineering. She worked for many years in the medical device industry with Fortune 500 companies in research & development, as well as leadership roles. She lives in Atlanta, GA and is happily married to Dr. Ekekwe for 16 years. She currently home schools her older son while the younger son attends school.

Yinka & Oby!

“Oby and I have been friends for over 30 years! #FGGC Sagamu Alumnus! A couple of years ago, we started talking more about her son’s autism diagnosis, Oby was very transparent and willing to share her struggles and triumphs, especially after knowing that was my field of specialization and passion. Overtime, she became an active member of my non-profit organization DCN “My Child Thrives” support group. Oby has been a vibrant, assertive and valuable resource to other members on the forum. She is certainly a force to reckon-with! Her witty takes on situations! her abundance of terms of endearment! as she showers group members with hope! ‘Autism diagnosis report certainly has nothing on this sassy lady!

Yours in HOPE!

Yinka!

as I share ‘Not Lucky, I’m Loved’ by Jonathan McReynolds to celebrate – April, ‘National Autism Awareness Month!

REBUILDING HOPE after a loss.

shine-2There comes a time in our life when we should start thinking about what we will leave behind after we die.

Well, not everyone enjoys talking about it anyway, but we should! Like, Y-e-s-t-e-r-d-a-y! Because we will all pass away someday.

What will be our legacy? How will our lifestyles be recorded into the annals of history?

Are we aware that this is a deep healing and gratifying moment that could also beAdvertisement  our only chance and opportunity to pay it forward or celebrate life by creating a setting for others to follow? 

So, do you remember how you felt when you lost someone close to you? You witnessed dreams and aspirations snatched away coldly leaving behind dark visions of despair and uncertainty about the future!shine-4

Did your life take an unexpected turn when people you love are diagnosed with a terminal illness? The big question we battle in our minds over time as we witness their pain and struggle with recovering and treatment is…’Will-They-Ever-Make-It?

Or will they disgrace death and defeat the grave? No matter what, our lives and their new journey would never be the same again.

Aha! Because an irreplaceable vacuum has been deposited in our hearts.

The fairytale life we had always dreamed of for them is no longer possible. Is it okay to question God at those very hurting period we witness with them? Or be like Job and continually keep seeking His face in the middle of it all? Is there still hope after all?  #EmpathyLeadsToHope

ekoI still clearly remember the night when my parents went out for an event….

It was Christmas of 1980, my dad wanted to impress his guests that night and had driven them all to watch Bobby Benson’s High-Life band play at the lavishly furnished ball room of Eko Hotel at Victoria Island Lagos.

Jubilant! Excited! my cousins and I (who had come visiting from Port Harcourt and UK) danced around our Christmas tree in the adult parlor as we waved goodbye to our parents, flashing our hand-held sparkler fire works! And as my dad’s car zoomed off the street, we were left with traces of rays from the street lights that eventually nudged us back inside.

But, my parents never came back that night or the next day!

Nothing prepared me for the tons of relatives who stomped into our house for the next couple of months!

There was constant whispering, cleaning or attending to unfamiliar faces who had pressed the loud doorbell that always made our dogs, Jolie and Julie mad and bark uncontrollably!

shine13The warm-natured relatives from my mother’s village in Delta State had hired a commercial station wagon named “Eni Afe” (the one we love) to transport them and their bags full of African pear and Garden egg directly from Oshimili Local government to my door step on Lagos-Island!

Oh by-the-way! Did I mention that they were always humming a moody native song and slapping their heads or their hips! Pointing to the sky as if blaming God for not being on time to the rescue! Or were they blaming the automobile company for the accident? I could barely pick their language, but was always able to identify the word “moto” as they begin to use their wrist to wipe away invisible tears.

And every time I would glare at them in fear and confusion wondering where they kept my parents!!

Ah, I-s-i-o-m-a ’Nne m (meaning My-good-head daughter or good-luck-girl-child) they would exclaim and carry me off into a non-auditioned Igbo dance and bury my head in their humongous Saturday Night-talcum-saturated bosom, like I needed to be smothered because I was missing motherly affection! Oh well, at that time, I guess I was anyway…Phew!    #ILoveMyMothersPeople

shine-14

And on the other side, my father’s Lagos-Brazilian quarters family members would all stroll in, in their meticulous apparel, puffing and huffing about how Uncle Kay (my dad) just won’t stop smoking, drinking and driving! their high stiletto competing with their pitchy British accent as they search in their patent fancy bags for a glass-beaded rosary that will be used to sanctify the house or search for their fancy hand fan even as the ceiling fan was in full motion!

I watched as they try to escape the cold nose caressing from our dogs! Their house helps or driver sneaks up behind them carrying home-baked bread and fruit baskets brought from Tom Jones area, covered with beautifully embroidered napkins.

Oh! There you are Yinkus baby! Everything is fine oh? We must book a mass for the family! Let’s thank Saint Christopher and Our Lady of good counsel! Or ‘has anyone gone to Catholic Mission to report this to the Arch Bishop? I will have my driver come get you for the weekend to play with your cousins at Ikoyi club” And then a big hug consumed with choking concentrated overdose of vintage Hermes perfume! 

Ah! play-with-my cousins-at-this-period? Hmm…’No-thank-you-Aunt! #MyFathersDramaticPeople

But, Why-won’t-someone-tell-me-what-ever-happened-to-my-parents

shine-11Thank goodness for older and notorious cousins who were very crafty in stealing top-classified family information! Last I know…they saw my Dad’s car somersault several times and crash into the edge of the reef at Bar beach!

All 4 of them (My dad, mom, late Uncle Siji and Dr. Alagoa) lost consciousness and were rescued by a nearby white garment church congregation having a vigil at the same time on the beach!

Okay…so they made it out of Eko Hotel and crashed into Bar beach on their way back home. Severely injured with the car written off! Both on admission and physical therapy for several months as I was left in denial about their disappearance until they returned home, not the same as they left in December, but alive.

At that moment and such tender age, nothing could have soothed or comforted me enough! For all I care, I could have been an orphan-in-waiting until they eventually came back home with bruises and scars so pronounced, even our dogs wept for them! Literally.

shine-12Today, as you are reading this…In homes and hospitals and confinement across the world, friends and family will soon gather around to usher in the New Year, beautifully decorated tables filled with warm, scrumptious food and gifts to give. Blinking lighted trees with trimmed gold ribbons!

It is Christmas!!

However, this day will be nothing like holidays of the past for many people.

Broken hearted families who’ve lost loved ones will struggle to keep hope alive, Friends with terminal or life threatening illness will have to struggle to catch a glimpse of what a painless season without medication or treatment would be, Lonely but committed soldiers covered in the dust of battle will patrol foreign borders, fighting for what they believe in, while their families back home long for word of their safety.

The homeless will make their way to the nearest soup kitchen, hoping for a warm meal and a smiling face as so many celebrate this day of abundance.

eko-2For some, an empty place at the table will be a painful reminder of the loved one lost or a failed relationship.

A worried husband and dad will sit at the head of the table, wondering how he is going to tell his family that he just lost his job.

A wife, struggling with emotional turmoil of an unfulfilled marriage, a beautiful young lady, wondering if the joy of the season is worth celebrating due to rejection and loneliness.

A family with a child on the spectrum still waiting for a miracle. The list of wounded hearts and unmet needs is brutal.

So, tell me, how do you create or find time to rebuild after you lose someone to death, ailment or disagreement? In all my 6 years of surviving that cancer, I have continuously struggled with the changes that’s taken over my body, my mind and my perception about life and people. I had to crave the urge to keep hoping for a fruitful life; medication, treatment and all by creating time for people in need!

For others, it is still denial of what they can’t understand and are still refusing to accept. That there could be hope because God says so, that we could still find joy and happiness even while going through that phase in life.

How do you intend to help someone going through all these the few days remaining in 2016? Would we rather patronize the needy by dropping by a shelter to suit your conscience? Send text messages or gifts when really your voice of encouragement is what they need? Label them as unfit or dying when really only God can dictate that journey! Hmm.

shine-5What gives us hope today? Even with friends and loved ones dying or shutting down around us, how do we comfort them?

You see, when we convince ourselves that life will be better when we have more money, when we find the right mate, when we get the kids raised or build the right house. We tell ourselves that our life will be complete when our spouse gets his or her act together, when we buy a nicer car, when we get that promotion, when we are able to go on our dream vacation or when we retire.

We keep trying to find joy, contentment and peace in lifeless places and useless things.  When really, we just need to be more thankful for being alive and seek the real meaning behind the lights on the Christmas trees, it’s not about the ornaments or the beautiful wrapped up gifts! Or the beautiful glittering ribbons.

It is about building HOPE for tomorrow! and why we need to celebrate life more…especially with those going through tough time this season.

And because I witnessed my parents come out alive of that ghastly car accident at Bar-beach that had the next day newspaper headlines as “Miracle on the Beach” I certainly have no choice but to keep trusting and hoping in God even as my own strength and flesh falter sometimes!

shine-3Because I-have-been-there-with-you, on both sides…I know the feeling of a blurry future when sickness knocks or when a loved one is lost or when we lose a pregnancy/baby…the vacuum is so uncomfortably evident and can never be filled!

I am hoping someone reading this will allow their heart to beat again after a loss.

Let’s spread the love of Christmas by bringing HOPE to someone really in need of affection today and comfort the weak at heart more.

To all those we lost in 2016. Let’s be rest assured that the peace the birth of Christ brings this season is surely abiding with them.

Yours in HOPE! As I share David Gokey’s ‘Tell Your Heart To Beat Again’

Yinka.

 

 

 

Are we comfortably numb in our denial? ‘Time to speak up on ABUSE!

Connecting with “The Total Woman Movement” – A Refuge of Comfort in Brokenness.

I once attended a sorority party about 2000 miles away from my college in 1992. Our Destination: University of Calabar! Excitement mode activated! Trust me, I had carefully packed away my popular orange halter-neck dress, with matching brown lace up mules, and my hairstyle? Aha! I’d travelled all the way to Onne villa (outside Port Harcourt) just to patronize the best hair braider in the whole of Rivers state! Phew! Such youthful exuberance! Silly painful vanity!abuse 7

Halfway through the journey, I began to feel feverish and tired! Oh no! It can’t be happening to me… I was aching all over, ah!  It must be M-a-l-a-r-i-a! Oh great! How can this be happening to me? I had so prepared for this day! This wasn’t in the plan!

My temperature was spiking, this fever has no respect for my opinion! In fact, ‘it has come to stay like a desperate housewife! My travelling team was terrified! “How can it be (I was getting helpless).

Anyway, without much ado, as if that fever was a red flag, the party was cancelled due to serious vigilante watch as opposing rival confraternities were in the midst of a serious war. We all spent the night off campus, in a rented hostel.abuse 3

Six other girls and I shared 2 adjacent rooms. It was a night I will never forget. Amongst being confined inside our rooms, noises of gunshots blasting throughout the night, as we became more frightened we looked to each other for support.

In the middle of nowhere, we became each other’s trusted companion, well, we had no choice but to wait and see what the morning brings forth.abuse 4

The fear and helplessness we felt that night brought back horrific memories of abusive pasts, stories of years of abusive upbringing, relationships and stolen childhood. Storylines that 7 beautiful, intelligent and oh-so-cool girls have never dared to talk about!

Tales that have been buried for years with those clicking fancy bangles, baggy Pepe jeans, colorful trendy t-shirts, shining pink lip gloss and fake make-believe smiles! oh boy! Did we vent!

“Ah, I was molested by my neighbor when I was 10!“I couldn’t tell anyone”

I was raped by my uncle when I was 12, I’d wanted to commit suicide”

“ I was never touched, but told constantly that I was ugly and a weakling”  

“ My mother’s boyfriend was very aggressive, he would beat me up and rape me, I couldn’t tell anyone, I was too frightened

I was betrayed by a senior in school, she raped me, I can’t trust anyone anymore”

 “I watched my father beat up my mother for years”He told us he loved us, but couldn’t stop hurting us” “His anger was uncontrollable”

I was raped inside my house” “I was ganged raped and molested at a party on campus” 

and on and on and on…we all talked into the early hours of the next day…sleep eluding our consciousness…and we were never the same after that day…forsaking the beauty that material things have managed to conceal, our hearts were on fire!abuse 6

Party forgotten and ignored, we had released everything no one had ever inquired of us… or the story our culture forbids by acceptance or utterance! we released the dark secrets that harbors lingering pain! ‘the substance of our current day frustrations and rejections…’stories we could not confess to priests during penance…or even during deliverance…’stories that family traditions sweeps under the carpet as generation to come wallow in confusion…’these were stories hidden in misery and denial…but, we had to travel all the way out of town, be confided into a hostel with bullets flying outside our windows….just for those stories to surface. We all had closure after confiding and crying out about it and promised to seek help after. The burden is now shared, not to be chastised or reprimanded, but to begin healing and moving forward.

Ok…that was 24 years ago! I have lived past those stories, but currently still living amongst those who are unable to talk about their story…’Abuse stories or even use their experiences to help raise awareness and help someone going through it.

What’s your Abuse story? Broken dreams or failed relationship? Or what’s that Abusive storyline you played a part in? years ago, that is still lingering and haunting you presently? You know why it’s still trailing after you. But to get closure to it, someone else somewhere right now is going through the same ABUSE you encountered…and the circle is continual UNTIL you Seek help, Campaign against it! Create a platform for awareness!abuse 1

Let’s celebrate a season of closure and recovery…’like when a heavy burden has just been off-loaded from our shoulders. A sense of commitment and togetherness…like ‘Wow! I am not alone! I thought I was the only one!

Since that day, I have learned to respect and look at those ladies differently with respect and courage, for speaking up about their abusive past. And today, I am hoping our stories could save a life or two!  Or is it still happening?

So, if you are reading this, ask yourself…’Does my fragrance (that beautiful perfect-picture image, I carry with me effortlessly) have fragments (stains, shame, sorrow, abusive stories)? Am I really truthful to myself? Am I still hiding behind the veil of pretense and still hoping that one day I would wake up and say “It never happened”Ah! If you are reading this and have ever encountered any form of abuse (sexual, verbal, physical or emotional) – don’t let it define you. When we talk about some of our stories, it helps someone else going through it or someone who’s gone through it and still struggling with acceptance of the shame of the aftermath.abuse 5

Our fragrance did have fragments! And it was time to break it open, not to ridicule each other or laugh at each other but a time of total submission, after all, we were all skeptical we’ll make it out of that place, alive. But we did, and now, there’s a story to be told to help uplift someone going through something similar…our Alabaster Jar just got cracked, and the spill is totally healing and comforting, what do you think?

Are we even aware of the comfort in our brokenness? Do we know that refuge from our circumstances and contentment in the midst of mishaps is found in the center of our surrender. Or is it in our brokenness?

If that is true, then why are so many women still living lives with little or no joy based on their past? I’m afraid that we have bought the lies of the enemy (the abuser), allowing him/her to steal our joy. Discouragement, weariness, disillusionment, shattered dreams, and unrealized goals are some of his/her favorite weapons, but the truth is that the enemy can only use what we allow him/her to use, “Our destructive abused past”

It is time for us to reclaim surrendered ground. Do you sometimes think you are fighting the same old battles you have been fighting for so many years? I do. Clinging to familiar pain because we find our identity there. Consumed with our own agenda, while  our joy is buried under a mountain of self loathing.abuse 2

Today, there’s HOPE! There’s a better tomorrow and it can be brighter than the past, the abusive past! Join the movement that comforts the abused today. The Total Woman Movement. Come as you are (BROKEN) learn how to release your inner fragrance (STORY) and let the scents relieve your life’s dents. (HEALING).

For more information about this movement, please visit www.totalwomanmovement.com

Yours in HOPE as I share Gloria Estefan’s “Coming Out Of The Dark”

Yinka.